1-800-INFORMATION
CANADA
Kid's Help Phone 1-800-668-6868 (24 hrs)
AIDS/Sexually Transmitted Diseases Info 1-800-772-2437
End Abuse - Domestic Assault Line 1-800-END-ABUSE (24 hrs)
Zenith Child Abuse Reporting & Help Dial the Operator and ask for "Zenith 1234" (24 hrs)
USA
Eating Disorders Help Line 1-800-382-2832 (24 hrs)
Domestic Abuse/Assault 1-800-333-SAFE (24 hrs)
Teen AIDS Line 800-234-TEEN (Mon-Fri) 800-440-TEEN (weekends)
National AIDS Line 1- 800-342-AIDS
National Teen Gay & Lesbian Hotline 1-800-347-TEEN (Thurs.-Sun., 7 pm-11:45 pm ET)
Family/Children's Mental Health Hot Line 1-800-654-1247 (24 hrs)
National STD Hotline 800-227-8922 (24 hrs)
Child help USA - Child Abuse Reporting 1-800/4-A-CHILD (24 hrs)
Family Violence Help Line 1-800/222-2000 (24 hrs)
National Runaway Hot Line 1-800-HIT-HOME (24 hrs)
Runaway Help Line 1-800-621-4000 (24 hrs)
Covenant House Crisis Support 1-800-999-9999 (24 hrs)
Suicide Help Line 1-800-SUICIDE (1-800-784-2433)
Youth Crisis Line 1-800-448-4663
RAINN - Rape Support Line 1-800-656-HOPE
Pregnancy Support and Advice 1-888-4-OPTIONS
General Crisis Counselling 1-800-785-8111
INFORMATION & REFERRAL RESOURCES
Hotline Numbers
National Drug & Alcohol Treatment 800-662-HELP
National Domestic Violence 800-333-7233
National Child Abuse 800-4-A-CHILD
National Youth Crisis 800-HIT-HOME
National Adolescent Suicide 800-621-4000
National Runaway 800-621-4000
Panic Disorder Information 800- 64-PANIC
Project Inform HIV/AIDS Treatment 800-822-7422
National Alliance for the Mentally Ill (NAMI)
State Affiliate List:
Alabama AMI (205)833-8336
Alaska AMI (907)277-1300
Arizona AMI (AAMI) 602)244-8166
Arkansas AMI-Help And Hope Inc (501)661-1548
California AMI (916)567-0163
Colorado AMI (303)321-3104
Connecticut AMI 203)586-2319
DC Threshold AMI (202)546-0646
Delaware)AMID 302)427-0787
Florida AMI (904)222-3400
Georgia AMI (404)894-8860
Hawaii State AMI (808)737-2778
Idaho AMI (208)376-2143
Illinois State Coalition AMI (217)522-1403
Indiana AMI (317)236-0056
Iowa AMI (515)254-0417
Kansas AMI (913)233-0755
Kentucky AMI (502)245-5284
Louisiana AMI (504)343-6928
Maine AMI (207)622-5767
Maryland Inc. AMI (800)467-0075, (410)467-7100
Massachusetts Inc AMI (617)426-2299
Michigan AMI (517)485-4049
Minnesota, Inc. AMI (612)645-2948
Mississippi AMI (601)992-1227
Missouri Coalition Of AMI (800)374-2138, (314)634-7727
Montana AMI MONAMI (406)443-7871
Nebraska AMI (402)489-6239
Nevada AMI (702)254-2666
New Hampshire AMI (603)225-5359
New Jersey AMI (609)695-4554
New Mexico AMI (505)254-0643
New York State AMI (800)950-3228, (518)462-2000
North Carolina AMI (919)851-0063
North Dakota AMI (701)852-5324
Ohio AMI (800)686-2646, (614)444-2646
Oklahoma AMI (800)583-1264
Oregon AMI (503)370-7774
Pennsylvania AMI (717)238-1514
Rhode Island AMI (401)464-3060
South Dakota AMI (800)551-2531, (605)697-7210
South Carolina AMI (803)779-7849
Tennessee AMI (615)531-8264
Texas AMI (512)474-2225
Utah AMI (801)584-2023
Vermont AMI (800)639-6480, (802)257-5546
Virginia AMI (800)484-7753 x(8264), (804)225-8264
Washington AMI (206)438-0211
West Virginia AMI (304)342-0497
Wisconsin Inc AMI (608)242-7223
Wyoming AMI (307)234-6246
Non-Profit Groups for Illnesses & Disorders
Government Agencies
AASK America/Aid to Adoption of Special Kids (800) 232-2751
American Association of Kidney Patients (800) 749-2257
American Council of the Blind (800) 424-8666
American Diabetes Association, Inc. (800) 232-3472
American Kidney Fund, Inc. (800) 638-8299
The American Liver Foundation (800) 223-0179
American Parkinson Disease Association (800) 223-2732
AT&T National Special Needs Center (800) 233-1222
AT&T National Special Needs Center (800) 833-3232 (TDD)
Better Hearing Institute (800) 327-9355
Blind Children's Center (800) 222-3566
Blinded Veterans Association (800) 669-7079
BRS Information Technologies (800) 955-0906
Captioned Films/Video for the Deaf Program (800) 237-6213
Center for Rehabilitation Technology (800) 726-9119
Center for Special Education Technology (800) 873-8255
Children's Hospice International (800) 242-4453
Cooley's Anemia Foundation, Inc. (800) 221-3571, (800) 522-7222
The Deafness Research Foundation (800) 535-3323
"Dial A Hearing Screening Test" (800) 222-3277, (800) 345-3277, (800) 334-2564
The EAR Foundation (800) 545-4327
Epilepsy Foundation of America (800) 332-1000
Epilepsy Foundation of America (800) 332-4050
The Family Survival Project (800) 445-8106
The Feingold Association of the United States (800) 321-3287
HEALTHSOUTH Rehabilitation Corporation (800) 768-0018
Hearing Information Center (800) 622-3277
Higher Education and Adult Training for People with Handicaps Resource Center (800) 544-3284
HUD User (800) 245-2691
Human Growth Foundation (800) 451-6434
IBM National Support Center for Persons with Disabilities (800) 426-2133
Job Accommodation Network (800) 526-7245, (800) 526-4698
LINC Resources, Inc. (800) 772-7372
National Alliance of Blind Students (800) 424-8666
National Association for Hearing and Speech Action (800) 638-8255
National Association for Parents of the Visually Impaired (800) 562-6265
National Audiovisual Center (800) 638-1300
National Autism Hotline (304) 525-8014
National Center for Research in Vocational Education (800) 762-4093
National Center for Stuttering (800) 221-2483
National Center for Youth with Disability (800) 333-6293
National Down Syndrome Congress (800) 232-6372
National Down Syndrome Society (800) 221-4602
National Easter Seal Society (800) 221-6827
The National Foundation for Illeitis and Colitis (800) 343-3637
National Head Injury Foundation, Inc. (800) 444-6443
National Headache Foundation (800) 843-2256, (800) 523-8858
National Hearing Aid Society (800) 521-5247
National Hospice Organization (800) 658-8898
National Information Center for Children and Youth with Disabilities 1-800-695-0285 (V/TTY), (202) 884-8200 (V/TTY)
National Information Clearinghouse for Infants with Disabilities and Life-threatening Conditions (800) 922-1107, (800) 922-9234
National Information System for Vietnam Veterans and their Children (800) 922-1107, (800) 922-9234
National Mental Health Association (800) 969-6642
National Multiple Sclerosis Society (800) 624-8236
National Neurofibromatosis Foundation (800) 323-7938
National Parkinson Foundation (800) 327-4545, (800) 433-7022
National Rehabilitation Information Center (800) 346-2742
National Retinitis Pigmentosa Foundation (800) 638-2300
National Society to Prevent Blindness (800) 221-3004
National Spinal Cord Injury Association (800) 962-9629
National Tuberous Sclerosis Association, Inc. (800) 225-6872
Office for Civil Rights, U.S. Department of Health and Human Services (800) 368-1019
Parkinson's Disease Foundation, Inc. (800) 457-6676
Parkinson's Educational Program (800) 344-7872
PsychINFO (800) 336-4980
RP Foundation Fighting Blindness (800) 638-2300
Social Security Administration (800) 772-1213, (800) 234-5772
Medicare (800) 638-6833
Stuttering Resource Foundation (800) 232-4775
Technical Aids and Assistance for the Disabled Center (800) 346-2939
Tele-Consumer Hotline (800) 332-1124
TRIPOD GRAPEVINE (800) 352-8888, (800) 287-4763
United Cerebral Palsy Associations, Inc. (800) 872-5827
United Leukodystrophy Foundation (800) 728-5483
VISION Foundation, Inc. (800) 852-3029
Visiting Nurse Association of America (800) 426-2547
Work & Family Clearinghouse- Women's Bureau 800-827-5335, 202-219-4486
AGING
National Council on Aging 800-424-9046
National Institute on Aging Information Center 800-222-2225
"Directory of Nursing Homes," 1990-91, 1,456 pages, $225. ORYX Press, 4041 North Central, Suite 700, Phoenix, AZ 85012, Tel: (800) 279-6799. Comprehensive listing of nursing home facilities and services in the U.S.
"Resource Directory for Older People," 1989, 24 pages, $10. National Institute on Aging, 9000 Rockville Pike, Bethesda, MD 20892, Tel: (301) 496-1752. (An updated directory is in process). Contains the names, addresses and telephone number.
AIDS
National Association of People with AIDS 202-898-0414
CDC National AIDS Hotline 800-342-2437, 800-458-5231, 800-344-7432 (Spanish)
National AIDS Information Clearinghouse 800-458-5231
AIDS Clinical Trials Info Service 800-874-2572
HIV/AIDS Treatment Information Service 800-448-0440
Teen AIDS Line 800-234-TEEN (Mon-Fri) or 800-440-TEEN (weekends)
"The National Directory: Local AIDS Services," 1991; call for price. U.S. Conference of Mayors, AIDS program, 1620 Eye St., N.W., Washington, DC 20006. Tel: (202) 293-7330.
Directory lists services related to AIDS in communities throughout the U.S. It includes local and state health departments, community based organizations, social-support services, federal agencies, hospitals and home health care agencies. Includes comprehensive listing of clinical treatments, PNA chapters, and state and local AIDS and HIV treatment resources.
"Funding Sources for AIDS Activities: Prepared for the 2nd National Conference on the Prevention of HIV Infection Among Racial and Ethnic Minorities in the U.S.," 1988. U.S. Conference of Mayors, 1620 Eye St., N.W., Washington, DC 20006. Tel: (202) 293-7330 Directory lists foundations which provide support for AIDS programs and AIDS-related activities in the areas of services, education, and research.
"The Raven's Guide to AIDS Prevention Resources," 1991, 45 pages, free. National Native American AIDS Prevention Center, 3515 Grand Ave., Suite 100, Oakland, CA 94610. Tel: (800) 283-2436
A Catalog of programs, materials, and resources focusing on AIDS prevention among Native Americans. Includes directory of resource agencies.
ALCOHOL
American Council on Alcoholism 800-527-5344, (410)889-0100
National Clearinghouse for Alcohol and Drug Information 800-729-6686, (301)468-2600
National Council on Alcoholism and Drug Dependence 800-622-2255
National Council on Alcohol and Drugs 800-475-HOPE
"National Directory of Alcohol and Drug Abuse Treatment and Prevention Programs," 1989, approx. 400 pages, single copy free.
National Clearinghouse for Alcohol and Drug Information, P.O. Box 2345, Rockville, MD 20852. Tel: (800) 729-6686; TDD (800) 487-4889
Nationwide listing of the location of programs. (Does not include descriptions of services provided by the programs).
ALZHEIMER'S DISEASE
Alzheimer's Association 800-272-3900
Alzheimer's Disease Association 800-621-0379, 800-572-6037
Alzheimer's Disease Education and Referral Center 800-438-4380 AMYOTROPHIC LATERAL SCLEROSIS (Lou Gehrig's disease) ALS Association 800-782-4747
ARTHRITIS
Arthritis Foundation 800-283-7800
CANCER
American Cancer Society 800-227-2345
National Alliance of Breast Cancer Organizations (NABCO) 1-212-719-0154
Y-Me Breast Cancer Support Program 800-221-2141
Candle lighters Childhood Cancer Foundation 800-366-2223
Cancer Information Service (800) 422-6237
The Wellness Community 301-314-2555
American Institute for Cancer Research Nutrition Hotline 800-843-8114
CEREBRAL PALSY
United Cerebral Palsy Association 800-872-5827
CHRONIC PAIN
American Chronic Pain Association 1-916/632-0922
CREDIT COUNSELING
Consumer Credit Counseling Services 800-388-2227
CYSTIC FIBROSIS
Cystic Fibrosis Foundation 800-344-4823
DEPRESSION
National Foundation for Depressive Illness Recorded announcement of the symptoms of depression and how to obtain help 800-239-1295 (24 hrs), 800-248-4344
National Depressive & Manic-Depressive Association 1-800-826-3632
Depression Awareness 800-421-4211
DIABETES
American Diabetes Association 1-800-342-2383
Juvenile Diabetes Foundation 800-223-1138
DOMESTIC VIOLENCE
Info & Referrals for women who are abused verbally, mentally or physically. 1-800-333-SAFE (24 hrs)
National Domestic Violence Hotline 800-799-7233
DOWN'S SYNDROME
National Down's Syndrome Society 800-221-4602
National Down's Syndrome Congress 800-232-6372
DRUG ABUSE
National Council on Alcohol and Drug Dependency 800-622-2255
National Council on Alcohol and Drugs 800-475-HOPE
National Clearinghouse for Alcohol and Drug Information 800-487-4889 or (301)230-2867
800-COCAINE 800-262-2463
888-MARIJUANA 888-627-4582
EATING DISORDERS
Grace Sq. Hosp. Eating Disorder Hotline 1-800-382-2832 (24 hrs)
Bulimia, Anorexia Self Help/Behavior Adaptation Support and Healing 800-762-3334, 800-227-4785
EPILEPSY
Epilepsy Foundation of America 1-800-332-1000.
GAMBLING
National Council on Compulsive Gambling 800-522-4700
GAY & LESBIANS
National Gay & Lesbian Hotline
Support & counseling for gay & lesbian teenagers. 1-800-347-TEEN (Thurs.-Sun., 7 pm-11:45 pm ET)
Gay and Lesbian National Hotline 888-843-4564 or (212)633-7492
GRIEF & LOSS
Grief Recovery Institute 800-445-4808
HEALTH
Civitex
Info on a broad range of problems (alcoholism, homelessness, family problems). 1-800-223-6004 (day)
NIS
Illnesses; support groups, education, treatments, community services, financial aid, advocacy, adoption services. 1-800-922-9234
National Health Info. Center
Info & Referral to support groups, prof. societies, government agencies, publications. 1-800-336-4797
Rural Information Center Health Service
Health service referrals in rural areas. 800-633-7701
HEART DISEASE
Mended Hearts 1-800-242-8721, Ext. 1442.
HOMOSEXUALITY
Gay & Lesbian National Hotline 888-843-4564 or (212)633-7492
HOSPICE CARE
Hospice Education Institute
Information and referral service. 800-331-1620
Children's Hospice Internation 800-242-4453
IMPOTENCE
Impotence Information Center
800-843-4315 (impotence information)
800-543-9632 (prostate information)
KIDNEY DISEASE / HEMODIALYSIS
American Association of Kidney Patients 1-800-749-2257
LIVER DISEASE
American Liver Foundation 1-800-223-0179
LUPUS
The American Lupus Society 1-800-331-1802.
MENTAL HEALTH
National Clearinghouse Family Support/Children's Mental Health 1-800-654-1247 (24 hrs)
National Alliance for the Mentally Ill 1-800-950-6264.
MULTIPLE SCLEROSIS
Multiple Sclerosis Association of America 1-800-532-7667
OBSESSIVE-COMPULSIVE DISORDER
National OCD Information Hotline 800-NEWS-4-OCD
PARKINSON'S DISEASE
American Parkinson Disease Association 800-223-2732.
PAIN
National Chronic Pain Outreach Association Telephone: 301-652-4948
PREGNANCY
Planned Parenthood 800-230-7526
Pregnancy Hotline 800-848-5683
National Adoption Center 800-862-3678
RARE DISORDERS
National Organization for Rare Disorders [NORD] Info. & networking for persons with rare disorders; literature. 1-800-999-6673 (day)
National Information Center for Orphan Drugs & Rare Diseases
Referrals to support groups, health centers; services for orphan drugs. 1-800-456-3503 (day)
Office of Orphan Products Development Answers questions about drugs used for illnesses affecting fewer than 200,000 Americans. Also provides referrals to pharmaceutical companies supplying orphan drugs. 800-300-7469
American Leprosy Missions 800-543-3135
Batten Disease Support 800-448-4570
Cooley's Anemia Foundation 800-522-7222
Histiocytosis Association 800-548-2758
National Lymphedemia Network 800-541-3259
National Neurofibromatosis Foundation 800-323-7938
National Reye's Syndrome Foundation 800-233-7393
National Tuberous Sclerosis Association 800-225-6872
Sickle Cell Disease Association of America 800-421-8453
Spina Bifida Association of America 800-621-3141
Sturge-Weber Foundation 800-627-5482
Tourette's Syndrome Foundation 800-237-0717
United Scleroderma Foundation 800-722-4673
SELF-INJURY/SELF-ABUSE
SAFE (Self-Abuse Finally Ends) Alternative Information Line 800-DONT-CUT
SEXUALLY TRANSMITTED DISEASES
Center for Disease Control-National STD Hotline 800-227-8922
SUDDEN INFANT DEATH SYNDROME (SIDS)
SIDS Alliance 800-221-7437
American SIDS Institute 800-232-7437
SPINAL CORD INJURY & PARALYSIS
National Spinal Cord Injury Association 800-962-9629
American Paralysis Association 800-225-0292
National Rehabilitation Information Center 800-346-2742
STROKE
American Heart Association Stroke Connection 800-553-6321.
STUTTERING
National Center for Stuttering 800-221-2483
Stuttering Foundation of America 800-992-9392
SUBSTANCE ABUSE/RECOVERY
Al-Anon Family Group Headquarters, Inc. (800) 356-9996
Alcoholism and Drug Treatment Addiction Center (800) 383-4357
American Council on Alcoholism (800) 527-5344
800 Cocaine (800) 262-2463
"Just Say No" International (800) 258-2766
The National Clearinghouse for Alcohol and Drug Information (800) 729-6686
National Drug Treatment Referral and Information Hotline (800) 662-4357
WOMEN'S HEALTH INFO
PMS Access
Recorded info line on premenstrual syndrome. Referrals to local doctors. 800-992-3636
Endometriosis Association
Recorded info line. 800-992-3636
Self-Help Clearinghouse
American Self-Help Clearinghouse 1-201/625-7101
National Self-Help Clearinghouse City University of New York Graduate Center 1-212/354-8525
National Mental Health Consumer's Self-Help Clearinghouse 1-800/553-4539
Self Help Clearinghouses & Information Help lines
For help in finding or forming a member-run Mutual Aid Self-Help group for any type of illness, disability, addiction, bereavement situation, mental health, parenting or other stressful life problem, there are self-help clearinghouses and information help lines in the U.S. and around the world:
Arizona (602) 231-0868
Arkansas (501) 932-5555 (info on groups only)
California
San Diego 619-275-0607
San Fancisco 415-921-4044
Sacramento 916-368-3100
Davis 916-756-8181
Connecticut (203) 789-7645
Illinois (312) 368-9070
Indiana (616) 925-0594
Iowa 1-800-952-4777 (in Iowa) (515) 576-5870
Kansas 1-800-445-0116 (in KS) (316) 689-3843
Massachusetts (413) 545-2313
Michigan 1-800-777-5556 (in MI) (517) 484-7373
Missouri Kansas City (816) 472-HELP
St. Louis (314) 773-1399
Nebraska (402) 476-9668
New Hampshire 1-800-852-3388 (information on groups only)
New Jersey 1-800-FOR-M.A.S.H. (in NJ) (201) 625-9565
New York
New York City (212) 586-5770
Westchester (914) 949-0788, ext. 237
North Carolina (704) 331-9500
Ohio
Dayton area (513) 225-3004
Toledo area (419) 475-4449
Oregon
Portland area (503) 222-5555 (information on groups only)
Pennsylvania
Pittsburgh area (412) 261-5363
Scranton area (717) 961-1234
South Carolina (803) 791-9227
Tennessee
Knoxville area (615) 584-6736
Memphis area (901) 323-0633
Texas (512) 454-3706
Utah
Salt Lake City (801)978-3333 (information on groups only)
Washington, D.C. (metro area) (703) 941-LINK
For information on any national U.S. group, or for those interested in starting new national support networks:
American Self-Help Clearinghouse
Its latest edition of its "Self-Help Sourcebook" directory has over 700 national and "model" groups,available for $9 postpaid).(201) 625-7101
National Self-Help Clearinghouse (212) 354-8525.
Self-Help Clearinghouses in:
CANADA
Calgary (403) 262-1117
Nova Scotia (902) 466-2011
Toronto (416) 487-4355
Prince Edward Island (902) 628-1648
Vancouver (604) 876-6086
Winnipeg (204) 589-5500 or 633-5955
OTHER COUNTRIES having national self-help clearinghouses include:
Argentina 1-582-8680
Germany 30-891-4019
Israel 03-2999389
Poland 22-314551
Child Abuse and Neglect
National Center for Missing & Exploited Children Hotline: 800-843-5678 Telephone: 703-235-3900
Child help USA Info & referrals to local agencies; crisis counseling. Info & referrals to local agencies; crisis counseling. 1-800/4-A-CHILD (24 hrs)
National Council on Child Abuse & Family Violence Info & referrals on child abuse & other types of family violence. 1-800/222-2000 (24 hrs)
National Clearinghouse on Child Abuse & Neglect Telephone: 800-FYI-3366, 703-385-7565
The National Resource Center on Sexual Abuse Telephone: 800-543-7006
National Committee to Prevent Child Abuse Telephone: 312-663-3520
National Adolescent Perpetrator Network Telephone: 303-321-3963
Military Family Resource Center, Military Family Clearinghouse Telephone: 800-336-4592, 703-696-5806
National Criminal Justice Reference Service Provides information on violent offenders. Telephone: 800-851-3420
National Clearinghouse on Runaway & Homeless Youth Telephone: 301-608-8098
National Maternal and Child Health Clearinghouse Telephone: 703-821-8955 ext. 254
National Center for Education in Maternal & Child Health Telephone: 703-524-7802
National Resource Center on Child Abuse & Neglect Telephone: 800-227-5242, 303-792-9900
National Victims Resource Center Provides information on perpetrators and victimization trends. Telephone: 800-627-6872
National Information Clearinghouse for Infants with Disabilities and Life Threatening Conditions Telephone: 800-922-9234, ext. 201, 803-777-4435
CSAP National Resource Center for the Prevention of Perinatal Abuse of Alcohol and other Drugs Telephone: 800-354-8824, 703-218-5600
National Clearinghouse for Alcohol & Drug Information Telephone: 800-729-6686, 301-230-2687
National Sudden Infant Death Syndrome Information Center Telephone: 703-821-8955 ext. 249 or 474
Missing Children
Vanished Children's Alliance Helps victims; conducts investigations; training & materials, registry; counselors; listening. 800-VANISHED (24 hrs)
Child Find
Helps locate children; helps lost children. Info for parents who have abducted their children in violation of a court order. 800/426-5678 (day), 800-A WAY OUT, (24 hrs)
National Center for Missing & Exploited Children
Info. re: missing/exploited youth; helps locate missing children. 800-843-5678
Runaway Hotline 800-231-6946 (24 hrs)
National Runaway Hotline Crisis counseling, Info & Referral for runaways & youth with other problems. 1-800-HIT-HOME (24 hrs)
National Runaway Hotline Info & Referral for runaways re: shelter, counseling; food pantries; transportation. 1-800-621-4000 (24 hrs).
Youth Issues/Problem Parenting
Covenant House NineLine
Referrals for youth or parents re: drugs, homelessness, runaways, etc. Message relays, reports of abuse. Helps parents with problems with their kids. If all counselors are busy, stay on line & one will be with you as soon as possible. 1-800-999-9999 (24 hrs)
National Adoption Information Clearinghouse Telephone: 301-231-6512
National Information Center for Children & Youth with Disabilities 800-695-0285, 202-416-0312
NIH'S INSTITUTES
National Institute on Aging 301-496-1752
National Institute on Alcohol Abuse and Alcoholism NIAAA 301-443-3860
National Institute of Allergy and Infectious Diseases NIAID 301-496-5717
National Institute of Arthritis and Musculoskeletal and Skin Diseases NIAMS 301-496-8188
National Cancer Institute NCI 301-496-5583
National Institute of Child Health and Human Development NICHD 301-496-5133
National Institute of Diabetes and Digestive and Kidney Diseases NIDDK 301-496-3583
National Institute on Deafness and Other Communication Disorders NIDCD 301-496-7243
National Institute on Drug Abuse NIDA 301-443-1124
National Institute of Environmental Health Sciences NIEHS 919-541-3345
National Eye Institute NEI 301-496-5248
National Institute of General Medical Sciences NIGMS 301-496-7301
National Heart, Lung, and Blood Institute NHLBI 301-496-4236
National Institute of Mental Health NIMH 301-443-4513
National Institute of Neurological Disorders and Stroke NINDS 301-496-5751
PRINTED MATERIAL FOR INFORMATION ON VARIOUS NEEDS
Amputation
"American Amputee Foundation: National Resource Directory," 1991, $25.
American Amputee Foundation, Inc., P.O. Box 250218 Hillcrest Station, Little Rock, AR 7225, Tel: (501) 666-2523
Major reference tool for amputee related information, direct services and products.
Amyotrophic Lateral Sclerosis (ALS)
"Why Didn't Somebody Tell Me About These Things?" 139 pages, $8.50.
Amyotrophic Lateral Sclerosis
Association, 21021 Ventura Blvd., Suite 321, Woodland Hills, CA 91364. Tel: (802) 782-4747.
A collection of information and illustrations of equipment, aids, clothing, skills and other things of interest to the ALS patient and patients with similar diseases and disability conditions.
Assistive Technology
"Assistive Technology Sourcebook," 1990 576 pages, $60.
RESNA PRESS, 1101 Connecticut Ave., N.W., Suite 700, Washington, DC 20036-4303. Tel: (202) 857-1199
Complete guide to assistive technology including information resources, equipment evaluation; personal care/home; education/children, employment, recreation/leisure, mobility, computer access, etc.
"Directory of Assistive Technology Data Sources," 1989, 14 pages, $10. Center for Special Education Technology, The Council for Exceptional Children, 1920 Association Drive, Reston, VA 22091. Tel: (703) 620-3660, (800) 873-8255 Annotated Directory of Assistive Technology Data Resources helps disabled individuals, parents, and educators to find current product information. Both on-line and print data bases are available.
"Assistive Technology Resource Directory," 1990, 62 pages, free. Center for Special Education Technology, The Council for Exceptional Children, 1920 Association Drive, Reston, VA 22091. Tel: (703) 620-3660, (800) 873-8255.
Annotated directory of resources to meet the need for information and awareness of assistive technology resources.
Blind/Visually Impaired
"Vision Resource List," 1991, 13th edition, free. VISION Foundation, Inc., 818 Mt. Auburn Street, Watertown, MA 02172. Tel: (617) 926-4232. Available in large print or cassette.
"Resources for Elders with Disabilities," large print, 1991. Resources for Rehabilitation, 33 Bedford Street, Suite 19A, Lexington, MA 02173. Tel: (617) 862-6455.
"Rehabilitation Resource Manual: VISION," standard print, 1991. Resources for Rehabilitation, 33 Bedford Street, Suite 19A, Lexington, MA 02173. Tel: (617) 862-6455.
"Living with Low Vision: A Resource Guide for People with Sight Loss," large print, 1991. Resources for Rehabilitation, 33 Bedford Street, Suite 19A, Lexington, MA 02173. Tel: (617) 862-6455.
Biannual resource directory listing agencies and other organizations which provide services for blind and visually impaired persons.
"Volunteers Who Produce Books, Braille, Tape, Large Type," 1988, 95 pages, free. Reference Section, National Library Service for the Blind and Physically Handicapped, Library of Congress, Washington, DC 20542. Tel: (202) 707-5100. Lists (by state) special education agencies, resources for visually impaired persons, proofreaders and producers of braille, recorded and large print.
"Resource Guide for Persons with Vision Impairments," 1991 (updated monthly, free).
National Support Center for Persons with Disabilities, P.O. Box 2150, Atlanta, GA 30055. Tel: (800) IBM-4832 (voice), (800) 284-9482 (TDD).
Provides description of different adaptive computer related aids and products that are available to individuals with vision impairments.
Children/Youth
"Directory for Exceptional Children," 1990-91, $50 plus $2.84 4th class postage. Porter Sargent Publishers Inc., 11 Beacon St., Boston, MA 02108. Tel: (617) 523-1670.
Over 3000 schools treatment centers, speech and hearing societies, state and private residential facilities, and other services for disabled children are described and listed for each state.
Data Sources
"Special Ware Directory," 1985 approx 100 pages, $24.75. Oryx Press, 4041 No. Central, Suite 700, Phoenix, AZ 85012. Tel: (800) 279-6799.
Software for Special Education:
"Directory of Software Data Sources, 1990," 30 pages, free. Center for Special Education Technology, The Council for Exceptional Children, 1920 Association Drive, Reston, Virginia 22091. Tel: (703) 620-3660, (800) 873-8255.
Annotated directory of software databases to assist special educators in their search for high quality instructional software.
Deaf/Blind
"Directory of Agencies Serving Individuals who are Deaf-Blind," 1991, 150 pages, call for current price, Helen Keller National Center, Community Education Department, 111 Middle Neck road, Sands Point, NY 11050, Tel: (516) 944-8900. Agencies are listed by state with description of services.
Deaf/Hearing Impaired
"American Annals of the Deaf: Reference Issue: 1991," 135 pages, $22.50. American Annals of the Deaf, 800 Florida Avenue, P.O. Box 6, Washington, DC 20002-3695. Tel: (202) 651-5340
This reference issue published annually in April, supplies information on programs and services for deaf persons in the United States including educational, rehabilitation, social and recreational resource. Most information is listed by state.
"International Telephone Directory of TDD Users: 1991," approximately 250 pages, $15 fee includes directory, a listing in the directory and a quarterly newsletter subscription.
Telecommunications for the Deaf, Inc., 814 Thayer Ave., Silver Spring, MD 20910. Tel: (301) 589-3006 (TDD), (301) 589-3786 (Voice) Lists TDD numbers for agencies and organizations, and those of individual members of TDI.
"Resource Guide for Persons with Hearing Impairments," 1991 (updated monthly).
National Support Center for Persons with Disabilities, P.O. Box 2150, Atlanta, GA 30055. Tel: (800) IBM-4832 (Voice), (800) 284-9482 (TDD)
Provides description of different adaptive computer related aids and products that are available to individuals with hearing impairments.
Developmental Disabilities
"1990 Resource Guide to Organizations Concerned with Developmental Disabilities," (annually), 244 pages, free. American Association of University Affiliated Programs for Persons with Developmental Disabilities, 8630 Fenton St., Suite 410, Silver Spring, MD 20910. Tel: (301) 588-8252
Listing of university affiliated programs, satellite centers, mental retardation research centers, selected government agencies and programs and other resources.
"Resource Directory of Scientists and Engineers with Disabilities," 1987. Project on Science, Technology and Disabilities, American Association for the Advancement of Science, 1333 H St., N.W., Washington, DC 20005. Tel: (202) 326-6672 (Voice/TDD)
A reference listing of over 950 scientists with disabilities, many of whom are available to consult in areas such as laboratory and curriculum adaptations for disabled accessibility, and on their particular scientific disciplines.
Down Syndrome
"Directory of Programs and Services for Children with Down Syndrome, Ages 0-6," 1991, free.
National Down Syndrome Society, 666 Broadway, New York, NY 10012. Tel: (212) 460-9330, (800) 221-4602 Listing of programs, services and age groups served.
"Parent Group Network," 1991, National Down Syndrome Congress, 1800 Dempster St., Park Ridge, IL 60068-1146. Tel: (800) 232-6372.
Listing of names, addresses and telephone numbers of parent groups/contacts throughout the U.S. and in other countries who are willing to serve as resources within their geographical area. Listing provided on a state level.
Employment
"Meeting the Needs of Employees with Disabilities," standard print, 1991.
Resources for Rehabilitation, 33 Bedford St., Suite 19A, Lexington, MA 02173. Tel: (617) 862-6455
"Labor Unions and Disability: A Manual for Labor Organizations and their Members and Rehabilitation Organizations, Employment Specialists, Job Coaches, Rehabilitation Counselors and Advocates." 1990, $3.00, 31 pages.
Ralard Printers, Inc., 7700 State Road 52, Dade City, FL 33525. Tel: (704) 588-2800
Guidebook is directed at labor unions and their members to inform them regarding the productive capacities of persons with disabilities and strategies for employment. Also targets rehabilitation and employment service agencies and organizations to increase their knowledge and role of labor unions.
"Labor Unions and Disability. Guidelines for Employment Specialists, Counselors, Job Coaches and Advocates." 1990, 13 pages, $1.00.
Ralard Printers, Inc., 7700 State Road 52, Dade City, FL 33525. Tel: (904) 588-2800.
Guidelines for employment specialists, counselors, etc., involved in job development, training, placement and advocacy to become more familiar with labor unions and how to include them more effectively in the placement process.
"Labor Unions and Disability Guidelines for Labor Unions and their Members," 1990, 36 pages, $1.75. Ralard Printers, Inc., 7700 State Road 52, Dade City, FL 33525. Tel: (904) 588-2800.
Designed to enlist the participation and support of organized labor in expanding employment opportunities and options for persons with disabilities.
Financial Aid/Assistance
"Financial Aid for the Disabled and Their Families, 1990-91, 309 pages, $35.00 + $3.00 for shipping.
Reference Service Press, San Carlos Industrial Park, 1100 Industrial Road, Suite 9, San Carlos, CA 94070. Tel: (415) 594-0743
A list of: Scholarships, Fellowships, Loans, Grants, Awards and Internships designed primarily or exclusively for the disabled and their families; status sources of benefits and reference sources on financial aid.
General Disability
"Case Management Resource Guide," 1991. 4-volume set, $60.00/volume, $195 for set.
Center for Consumer Healthcare Information, P.O. Box 16067, Irvine, CA 92713. Tel: (800) 627-2244
A directory of homecare, rehabilitation, mental health and long-term care facilities.
"Resources for People with Disabilities and Chronic Conditions," standard print, 1991. Resources for Rehabilitation, 33 Bedford St., Suite 19A, Lexington, MA 02173. Tel: (617) 862-6455
"THE FIRST WHOLE REHAB CATALOG - A Comprehensive Guide & Products and Sources for the Physically Disadvantaged," 1990, 240 pages, $16.95.
Betterway Publications, Inc., P.O. Box 219, Crozet, VA 22932. Tel: (804) 823-5661
Lists thousands of sources for adaptive equipment and specialized supplies and services for disabled individuals. Principal listing categories include: daily living, personal care, access, communication, mobility, transportation, health, fitness, recreation, education and vocation.
General Health
"Consumer Health Information Sourcebook," 1990, 224 pages, $39.50. ORYX Press, 4041 North Central, Suite 700, Phoenix, AZ 85012. Tel: (800) 279-6799
Disseminates health information to the general public. Provides descriptive evaluations of some 750 books, 79 popular magazines and newsletters, over 700 pamphlets, 30 health information clearinghouse and information centers, hotlines, etc.
"Health Information Resources in the Federal Government", 1990, 61 pages, $3 handling fee.
ONHIC, P.O. Box 1133, Washington, DC 20013-1133. Tel: (800) 336-4797 or (301) 565-4167
Directory encompasses selected federal and federally sponsored health information resources that ONHIC has found useful in responding to health inquiries.
Genetic Disorders
"International Directory of Genetic Services," 1990, 74 pages. The March of Dimes Birth Defects Foundation, 1275 Mamaroneck Ave., White Plains, NY 10605. Tel: (914) 428-7100
Directory of Clinics that provide comprehensive genetic services worldwide.
"A Guide to Selected National Genetic Voluntary Organizations," 1989, 223 pages, free.
National Center for Education in Maternal and Child Health, 38 and R Streets, N.W., Washington, DC 20057. Tel: (202) 625-8400
Lists organization by subject; provides a description of purposes of each organization and publications available.
Prescriptions-Low Cost
Pharmaceutical Patient Assistance Directory Line- 800-762-4636. Provides a directory of various pharmaceutical assistance programs for persons who cannot afford prescriptions on their own.
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